Hi, new here kind of..I never had the strength mentally to speak openly about my issues as they are somewhat out of the norm To give a short explanaition. I have an ileostomy and have had it since October 2018. The reason for it is due to something wrong with my pelvic floor and/or nerves. I suffer painful erections and if I do ejaculate the tension is unbearable. Even laying down flat cause massive pains on my left flank. So far there has been no real answer on what is wrong due to lacl of knowledge in my area as well as being reduced to public medcial assistance. I recently have been trying to date as well as find answers and potential help for this. 

Many women I have dated after have basically never returned calls or anything. Some have even went on to post about me on social media and poke fun at my issue. My ex fiance walked out because she felt I was cheating when I was in fact just fearing the pain sex would cause. Anyone have advice on what to do or if they have similar health issues.

I apologize of this post is in the wrong section @mods

There has to be a reason for the pain you're experiencing, and the right doctor will find it and hopefully, be able to do something about it.    Don't give up!  The answer is out there.  

Did you explain the problem to your ex-fiance and that you were NOT cheating?  If you did and she walked out anyway, you're better off without her.  Not every woman is like the women you have met.  Talking about your problems on social media is unconscionable!  You don't need women like that in your life.  Nobody needs anybody like that in their lives. 

I wish you luck in finding the answers you need.  You WILL find them.  Keep trying.   Everyone on this site has been through awful things, both physically and socially.  We're all with you, all the way.

Hi Dave.  I can somewhat relate to what you are feeling. I am a widow of 5 years and would love to find a special someone to spend the rest of my life with but the men I have met just find every excuse in the book to run the other way when they find out I have an Ostomy.  BUT I am not giving up hope and neither should you. As Puppyluv said you need to find out why you are experiencing so much pain. Keep us posted as we do care. 

Hello Dave. I am so sorry to read about your problems and can ceratinly empathise with your plight. Some time ago I had similar problems with painful erections and even more painful intercourse. I recall the pain being so bad it brought tears to my eyes. Very embarrassing when I was supposed to be enjoying the experience! After much heartsearching, I decided that sexual intercourse was not worth the pain so I gave up on it.  I tried to make it clear to my wife that my abstinance was not because I did not desire her but that the excruciating pain made the experience unfulfilling. After about a year of abstinence, I tentatively tried again, only to find that the problem had resolved itself (without any medical intervention). What a relief!

I'm only sharing this story because I feel that you should not give up hope on this one. I cannot pretend to know what is wrong with you (or me) in these circumstances, but, because of my reluctance to use medical services, what I have found is that many phyisical ailments get better by themselves if the body and mind are given time to rest and heal.

I hope you find a solution to your problems soon.

Best wishes

Bill 

Hi Dave and welcome to the right place.  We are not Doctors (some are), but the huge number of people on this site add up to a tremendous amount of experience. The four posts you received give great advice, as usual. As a woman, I cannot undertand your problem, but we can attest to your pain...physical and emotional.  It is incomprehensible to me that someone would post intimate details of anything, good or bad on social media,  That's what pornography si for.  Know that there are many women out there, but, if I may get hold of our physical problems before you go on.  I've yet to tell any man I have an ostomy (except my priest). And no one needs to know...until they do.  Keeps us posted, your other systoms are horrrible, as as Bill said, maybe quite reversable, or mabye just time will heal.  The human body is an amazing thing, it's need far more time to heal than we, in this superfast world of ours, are willing to wait.

I think my hands have been Chemo's today...better rest up before I post again. Hope you got the gist.

Hi im just reading your in medical field can we text? Im

not sure where to text you beside here after reading your in Med field I’m trying to figure a lot out NewlifeVictoria Messsge me please thank you hope your feeling better after your 6months have a good day 

Honestly anyone who would ridicule a person who has had major surgery to improve the quality of their life isn't worth having in your life. I understand that it's difficult for you to trust someone enough to even think about starting a new relationship  but you will find the right person for you.

Her actions were/are deplorable but there are many caring, understanding people out there. Please don't let her and her sad little friends "win". You will overcome these problems. 

Dave, Ask a medical person about the possiblity of Peyronies.  I had a problem similar to what you describe.  It went a away in several months without medical assistance.  The curve they talk about, for me it was drastic.   

Dave PS I have no idea as to whether my problem was related to my ileostomy or not.

Dave, fear not. Someone out here is going through the same thing. Just be patient. You might wanna start a new thread " for men only...."to catch the eye of guys interested. Using a broad title can be misleading and uninteresting to looker-on folks.

you live in the greatest city in world for hospitals. I see no reason why you can't get help from any of them, but please get some input from guys here first. Prepare yourself. Arm yourself against bs doctor thinking they have the answers. Unless they  have the problem themselves, they could not know.

the girls using social media to poke fun of you is really hurtful. One could retaliate. I would consider it. But they must be very young and just immature not knowing how much pain they caused you. If u need ammo to fire back at them, lmk. I can be bad ass on social media. See how they like it when the tables turn. Stupid, irresponsible "girls" just need a taste of their medicine. .