This topic is about the concerns and decisions surrounding the removal of a rectal stump in individuals with a permanent ileostomy. The person who started the discussion has a rectal stump left in place for a potential future reconnection but is experiencing issues like intermittent bloody discharge. They are seeking advice and insights from others who have faced similar situations. Here are some key points and advice shared by others:

- The person is dealing with bloody rectal discharge that hasn't improved with medication and has a history of colitis or proctitis, which are types of inflammatory bowel disease (IBD).

- There are concerns that bloody discharge might indicate infection, inflammation, or a fistula. Some surgeons suggest that a chronically inflamed stump could increase cancer risk, making removal a common recommendation.

- The person wants to understand how common cancer is in retained stumps, whether removal is mainly for cancer prevention or to manage bleeding, and if removal would eliminate all IBD symptoms. They are also curious about potential side effects, like erectile dysfunction, and whether rectal biopsies or surveillance are typically done.

- They feel that their original surgeon might have considered removing the rectum initially and are now wondering if complete removal would provide relief from symptoms and leakage.

Additional questions and information from the person include:

- They are looking for firsthand experiences about recovery after rectum removal and any ongoing IBD issues.

- They are curious if surgeons sometimes remove only the rectum while leaving the anus, and what benefits that might offer.

- They wonder if leakage occurs when the anus is left in place and if continued toilet use is necessary.

Advice and insights from others include:

- Several people had their rectal stump and sometimes the anus removed many years ago, with no subsequent cancer, bleeding, or ongoing IBD issues. They were not initially warned about cancer risks.

- Some members had full proctocolectomy due to concerns about chronic inflammation leading to cancer, and they have not experienced further IBD symptoms.

- One person had only the rectum removed, retaining the anus, and reports no leakage, bleeding, or need for IBD medication. Their doctor performs periodic scopes because anal tissue remains.

- Phantom sensations around the closed anus are common initially but tend to fade. Recovery is described as challenging but manageable, with one person returning to limited work after eight weeks.

- Another member with persistent bloody-mucus discharge is scheduled for stump and anus removal due to cancer risk concerns.

- Quality of life after removal is generally positive, with no need to sit on a toilet. Some regret not being able to pass gas normally, but they are otherwise symptom-free.

- No one reported experiencing erectile dysfunction, although it was mentioned as a concern by the person who started the discussion.