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Feb 17, 2020

Hernia near stoma - Missed diagnosis? Ultrasound needed? Pale stoma & blockage?

This topic is about a person who noticed a small bulge next to their stoma after a hospital stay for dehydration. They are concerned it might be a parastomal hernia, especially since their stoma has turned pale. They are seeking advice on whether this could have been missed in previous imaging tests and if an ultrasound might be helpful. They are also curious about others' experiences with parastomal hernias and related symptoms.

Here are some insights and advice shared by others:

1. Imaging and Diagnosis
- CT scans are generally effective in diagnosing parastomal hernias. If there's still doubt, requesting a repeat CT or an ultrasound could be beneficial.
- Some people have scheduled CT scans specifically to investigate new bulges accompanied by pain.

2. Typical Symptoms and Course
- Common early signs include bulges beside the stoma and occasional local pain or burning sensations.
- Some hernias can be large yet painless, while others might increase waist size, making clothing fit challenging.
- Hernias can occur alongside a prolapsed stoma, which might remain stable for years before surgery is needed.

3. Support Garments
- The Nu Hope Ostomy Hernia Belt is recommended by some, with insurance coverage available for certain users. It's also available on Amazon.
- A DIY option involves using wide elastic secured with fabric glue for temporary support.
- While belts provide support, they can be uncomfortable in hot weather, so finding the right fit may require some experimentation.

4. Surgery and Waiting Times
- Surgical repair is the definitive solution, but in Canada, waits for elective surgery can be a year or more.
- Surgery might be delayed if the hernia isn't causing serious issues, with some waiting several years for repair.

5. Day-to-Day Management Tips
- Wearing a well-fitted hernia belt during activities can help prevent the hernia from getting worse.
- Keep an eye on the stoma's color; persistent paleness or sudden changes, along with symptoms of obstruction, should prompt immediate medical attention.
- Avoid heavy lifting and activities that strain the core until a surgeon has assessed the situation.
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