This topic is about preparing for an early discharge from the hospital after emergency surgery that resulted in the creation of a stoma. The surgery was necessary due to widespread gynecological cancer, and the patient is expected to leave the hospital sooner than usual because of the COVID-19 crisis. Here are some helpful tips and advice for managing this situation:
1. Transport and Home Arrival:
- Use a pillow to support the abdomen during the car ride home to reduce discomfort from bumps.
- Bring bath or hospital bed-pads or towels to protect car seats and bedding.
- Ask for clear plastic hospital urinals with lids for use during the journey.
- Ensure the hospital provides at least two weeks' worth of ostomy supplies before discharge, as you may use more supplies while learning.
- Collect important contact numbers, such as those of the surgeon, stoma nurse, and GP, to avoid communication issues.
- Make sure to have a full supply of all current medications when leaving the hospital.
2. Immediate Supplies and Equipment for Home:
- Have hospital bed pads (either washable or disposable) to reduce laundry needs.
- Stock up on ostomy pouches, barriers, adhesive remover, disposal bags, and any support garments provided by the hospital.
- Follow a basic pain-relief schedule and have anti-constipation or anti-diarrhea medications as directed.
3. Diet and Hydration (Vegetarian Focus):
- Begin with very soft, low-residue foods like bananas, crackers, yogurt, well-cooked rice or pasta, and smooth soups. Introduce other foods gradually.
- Consult with the ward dietitian before discharge if possible.
- Maintain good fluid intake, as opioids can slow the gut and thicken output.
4. Professional Follow-Up:
- Inquire if a community stoma nurse can make home visits; if not, arrange for virtual consultations.
- Expect the oncology team to outline plans for chemotherapy and long-term cancer surveillance, which may include regular blood tests and annual CT scans.
5. Education and Self-Help Resources:
- Both the patient and caregiver should learn and practice a full pouch change before leaving the hospital.
- Use YouTube ostomy channels for visual step-by-step guidance while in isolation.
- Consider registering the patient on an online forum for real-time peer support.
6. Managing Expectations:
- Be aware that opioid painkillers can slow stoma output; monitor for any signs of blockage or severe cramps.
- The first few weeks can be tiring, so prioritize rest and simple nutrition.
- Emphasize hand hygiene and surface disinfection to minimize COVID-19 risk during isolation.
7. Alternative Care Settings:
- While short-stay rehab or nursing-home placement would typically be helpful, it may not be feasible during the pandemic. Home care with virtual support is a reasonable alternative.
8. Emotional Support:
- Reassure the family that many people with ostomies have started in similar situations and managed successfully.
- Community members are available for specific questions and moral support.
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