Flying with a Spinal Cord Injury and Ileostomy: Tips Needed

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Breebie28
Oct 08, 2025 8:56 pm

Does anyone in here have a spinal cord injury, have an ileostomy, and fly to travel? I'm facing an ileostomy and am very concerned about how I'll fly given that I can't get up to use the restroom to empty bags. Thoughts?

Hecate
Oct 08, 2025 9:03 pm

I know others have said they use doggie poop bags when traveling by car. Maybe that could work on the plane as well?

Posted by: BeachRN

Thank you for your quick reply. I'll discuss irrigation with my doctor. I'm sure it would be down the road. My output is still very liquid. It's all so unpredictable at 6 weeks post-op. I have such a fear of constipation as I struggled with this forever. I used a fiber source to thicken the stool but it hasn't helped very much. I guess I will continue to be positive but it is a bit of a pain. This website is great and everyone is so informative. Cheryl

SusanT
Oct 08, 2025 9:13 pm

You'll want to limit your intake prior to flying so you have less output. Hopefully, there will be some other ideas soon.

warrior
Oct 09, 2025 12:18 am

Hi. I believe we have at least 3 other members here with SCI. Sit tight. Hopefully, they see your topic and reply soon.

Also, was there a discussion about having a colostomy instead of an ileostomy?

As you may know, a colostomy is easier to handle and more forgiving than an ileostomy.

Breebie28
Oct 09, 2025 12:32 am

Yes, thank you :) I have a colostomy already but may have to revise to an ileostomy, which will present far more complications.

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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warrior
Oct 09, 2025 1:10 am

Ooooh..snap. No choice it seems. This happens to a few. Going from one type to the other.