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Jul 15, 2020

Pouch Filling and Abdominal Cramping - Seeking Advice

This topic is about managing the challenges of having an ileostomy, particularly when the pouch fills quickly after meals and is accompanied by abdominal cramping. The person sharing their experience has had an ileostomy for eight years and is seeking advice from others who might have similar experiences. Here are some helpful insights and advice shared by others:

1. It's common for those with ileostomies to experience rapid pouch filling after eating due to the gastro-ileal reflex. This happens because the colon and anal sphincter are no longer present, causing the small bowel to empty quickly. Planning meals around events can help manage this.

2. Many people with ileostomies find they need to empty their pouch multiple times at night. However, not everyone experiences abdominal cramping.

3. To thicken the output and slow it down, try these strategies:
- Eat a bowl of oatmeal or include rice noodles in your meals.
- Use marshmallows as a quick fix when you're away from home.
- Experiment with other thickeners like noodles and crackers, as listed on the "Ostomy Food Reference Chart," to find what works for you.

4. Chew your food to a "peanut-butter" consistency to help prevent obstruction, cramping, and watery output. Staying well-hydrated is also important.

5. Aim to keep your output volume under about 1100 cc per day, as recommended by physicians. However, it's normal to occasionally have days with higher output, up to 2 liters.

6. For some people, the output from a meal may not appear for 5–6 hours. This timing can vary from person to person and may improve as the small intestine adapts over time.

7. If your pouch fills while you're in public, remember that most people can empty it while standing up. Knowing this can help reduce anxiety about leaving the house.
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