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Nov 27, 2020

Opinions on ileostomy reversal with Crohn's?

This topic is about considering an ileostomy reversal for someone who has Crohn's disease. The person is looking for advice from others who have been in a similar situation to help them decide whether to go through with the surgery. Here are some insights and advice shared by others:

1. Some people would eagerly take the opportunity for a reversal, as it's not always an option for everyone.

2. Since it's a major surgery, it's important to take your time to decide. Consider asking for more time, getting second or third opinions from other surgeons, and doing thorough research.

3. Evaluate your current health and anatomy:
- Discuss with your doctor how the ileostomy has impacted your Crohn's disease and if your colon is healthy enough for reconnection.
- Find out if the surgery would bypass the colon and how that might affect your bathroom habits.
- Be aware of potential risks like short-bowel syndrome, the need for further surgeries, or the possibility of needing another stoma in the future.

4. Think about the possibility of the disease returning or the reversal not working. Since Crohn's is an autoimmune disease, inflammation can reappear. Be prepared for the possibility of needing a permanent stoma if things don't go as planned.

5. Reflect on your quality of life. Some people find living with an ostomy manageable and are comfortable with it. Consider how you might feel about your decision in the long term.

6. Remember that recovery from a reversal can take time. While it's generally simpler than the initial surgery, bowel function might take months or even years to stabilize, and it may not return to how it was before the ostomy.

7. It might be helpful to consult a rheumatologist, as Crohn's can cause issues beyond the digestive system.

8. Keep in mind that a "reversal" doesn't cure the disease or undo previous surgeries. It's more about reconfiguring your gastrointestinal tract.
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