This topic is about vision problems that can occur after having a colectomy or ileostomy, specifically focusing on wet macular degeneration (WMD) and the use of Avastin injections as a treatment. The person sharing their experience developed WMD about eight months after their surgery for Crohn’s or colitis and is seeking to connect with others who might have faced similar issues after ostomy surgery or due to inflammatory bowel disease (IBD).
Here are some helpful insights and advice shared by others:
1. Many people with long-term ileostomies, ranging from 3 to 30 years, have not experienced new eye diseases beyond typical age-related changes. This suggests that WMD is not a common complication following ostomy surgery.
2. Some individuals point out that WMD often has a hereditary aspect. If there is a family history of WMD, such as a mother or sister having it, genetics might play a more significant role than the surgery or the disease itself.
3. It's noted that while IBD can lead to certain eye issues like episcleritis, these are different from macular degeneration. Getting an accurate diagnosis is crucial to ensure the right treatment is given.
4. Cataracts and general aging of the eyes, as reported by someone with a 30-year ileostomy, seem unrelated to ostomy procedures and are more commonly associated with getting older.
5. The overall recommendation is to continue with Avastin therapy under the guidance of a retinal specialist. It's important to regularly monitor vision and discuss any eye symptoms related to IBD, such as episcleritis or uveitis, with both a gastroenterologist and an ophthalmologist to ensure thorough care.
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