The topic is about finding ways to get a good night's sleep when you have an ileostomy. The person sharing their experience had surgery in March and is struggling with waking up multiple times at night to empty their pouch. They are curious if the nighttime output will decrease over time and are looking for advice on how others manage to sleep better.
Here are some helpful tips and insights shared by others:
1. **Empty-before-bed strategy**
- Try to stop eating 3-4 hours before bedtime so that your bowel is mostly empty of food. This way, only bile will collect, allowing for longer stretches of sleep.
- Gradually extend the time between alarms by 30-minute increments to find your safe window for uninterrupted rest.
2. **Adjust meal timing and size**
- Consider making lunch your largest meal and keeping dinner small, finishing by 6 p.m. (or 9 p.m. for some) to reduce nighttime output.
- If maintaining weight is not an issue, fasting longer before bed can help reduce the volume of output.
3. **Bag capacity options**
- Use a larger-capacity pouch or an irrigation sleeve with a knotted end if you need longer sleep periods.
4. **Hydration timing and formulas**
- Shift major fluid or oral rehydration solution (ORS) intake to the middle of the night, after food has cleared. Some people drink 1 liter of their own ORS over an hour and find it fully absorbed.
- Liquid IV from Costco is one option for ORS, but its effectiveness can vary. Compare it with homemade or other brands to see what works best for you.
5. **Weight-related considerations**
- If maintaining weight is a challenge, you might need to eat late at night, which could mean shorter sleep or scheduled nighttime empties.
- Some people adapt to functioning well on shorter sleep stretches over time.
6. **Bile secretion insight**
- Continuous bile production is normal, and without a colon, it is not re-absorbed, so output continues even when fasting. Planning around this can help improve sleep.
7. **Training the stoma / routine building**
- Many find that their output naturally slows overnight with time. Setting an alarm for one scheduled emptying, like at 3 a.m., might be enough.
- Empty your pouch during any normal nocturnal bathroom trips, even if the volume is small, to prevent overfilling.
8. **Diet experimentation**
- Pay attention to foods that speed up transit or cause blockages, such as raw vegetables or mushrooms, and adjust your diet to minimize nighttime activity.
- Everyone's gut adapts differently, so trial and error is essential.
9. **General encouragement**
- Many people report that sleep improves as the bowel adapts. It requires perseverance and routine adjustments, but it can get better over time.
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