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Jul 26, 2021

Transitioning from ileostomy reversal to colostomy - Eating habits and quality of life?

This topic is about transitioning from an ileostomy reversal to a colostomy, focusing on eating habits, output, and quality-of-life expectations. A person with Stage-4 colon cancer is preparing for a permanent colostomy after experiencing significant challenges following an ileostomy reversal. They are seeking advice on how a colostomy might improve their situation, particularly regarding eating habits and managing symptoms like radiation proctitis.

Here are some helpful insights and advice shared by others who have been through similar experiences:

1. Quality of Life: Many people find a colostomy easier to manage than an ileostomy. Once you can start colostomy irrigation, it can lead to more predictable bowel movements and fewer bag changes.

2. Hydration and Output:
- With an ileostomy, the output is more liquid, which can lead to dehydration and salt loss. Irrigation is not an option.
- A colostomy usually has thicker output, making hydration easier to manage. There is a potential for constipation, but irrigation is often possible.

3. Food and Diet:
- Most people with a colostomy can enjoy a normal diet with few restrictions. It's important to chew food thoroughly.
- Be mindful of foods that might increase odor, gas, or the risk of blockages. Coloplast’s website offers specific food lists that can be helpful.

4. Odor Management: Odor can be more noticeable with a colostomy. Using odor-reducing pouches or filters and being mindful of your diet can help manage this.

5. Radiation Proctitis: Hyperbaric Oxygen Therapy (HBOT) is suggested by some as a non-invasive treatment option, typically involving daily sessions for about six weeks.

6. Preventing Hernias: Start using a supportive ostomy belt early on. This can significantly reduce the risk of developing a parastomal hernia. Some members have had to undergo hernia surgery due to not using a belt early enough.

7. Mental Outlook: Both ileostomies and colostomies have their pros and cons, but many people affirm that life can be managed successfully with either.

8. Resources: Coloplast is mentioned as a resource for diet information, products, and irrigation supplies. A generic support belt is recommended for hernia prevention, though no specific brand is named.
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