This topic is about the challenges faced by someone living with an ileostomy and short bowel syndrome (SBS), particularly when it comes to missing certain foods they can no longer safely eat. The person is sharing their experience of having to avoid or significantly change their diet to prevent complications like blockages, dehydration, diarrhea, or high output. Here are some insights and advice shared by others in similar situations:
- Keep a personal food diary. This can help identify which foods cause problems and prevent future issues by spotting patterns.
- Chew your food thoroughly until it is almost liquid. This simple step can help reduce the risk of blockages.
- After experiencing an obstruction, reintroduce roughage slowly and in small amounts. Many people find they can eventually eat some of their favorite foods again by testing one at a time.
- Remove skins or fibers from fruits and vegetables. Skinless and well-cooked versions are often easier to tolerate.
- Purée or blend greens like spinach or broccoli with olive oil and garlic, and drink them with coffee to help them move through the system.
- Use nut butters like peanut, almond, or sunflower-seed butter as substitutes for whole nuts to satisfy cravings without the risk of blockages.
- For carbonated drinks, if gas is an issue, let them sit open for a few hours to reduce fizz before drinking. Some people find they can eventually enjoy sodas in moderation.
- For managing blockages, some have found relief by requesting specific medications in the ER, resting, and then following a clear liquid diet before gradually reintroducing solids.
- To manage weight on a restricted diet, incorporate low-impact exercises like walking or cycling and be mindful of calorie-dense "safe" foods that can lead to weight gain.
- With SBS, avoid medications in capsule or time-release form. Instead, ask for liquid, chewable, sub-lingual, or intramuscular options to ensure proper absorption.
These tips aim to help those with similar conditions navigate their dietary restrictions while maintaining their health and well-being.
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