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Nov 26, 2021

Experiencing Bowel Movements with an Ileostomy: Should I Worry?

This topic is about understanding why someone with an ileostomy might still feel the urge to have a bowel movement and occasionally pass something that looks like stool. This can be puzzling, especially when the ileostomy is permanent and everything is sewn shut internally. Here are some helpful insights and advice on this matter:

1. Even with a permanent ileostomy, the remaining bowel can still produce mucus. This is because the disconnected section of the bowel and the rectal stump continue to secrete mucus.

2. The mucus can appear in different forms:
- It might look like a slimy liquid and can be cream-yellow, brown, or white in color.
- Sometimes, it can form a firmer plug or lump that resembles stool, especially if it accumulates and partially dries out.

3. Feeling the urge to "poop" is normal. The build-up of mucus can trigger familiar rectal sensations. How often this happens can vary widely among people with an ileostomy, ranging from weeks to months between episodes.

4. Generally, this is nothing to worry about. Expelling the mucus is normal and it's usually better to let it out than to keep it in.

5. However, there are times when you should seek medical advice:
- If you notice blood mixed with the mucus.
- If there is a change in the amount, color, or consistency of the mucus that causes concern.
- You can collect a sample of the mucus to show your clinician if you want reassurance.
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