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Feb 14, 2022

Managing Ostomy with Parastomal Hernia - Seeking Advice and Support

Managing an ostomy with a newly-diagnosed parastomal hernia can be a challenging experience. A parastomal hernia occurs when part of the intestine pushes through the abdominal wall near the stoma, creating a bulge. This can be alarming, especially when first diagnosed. Here are some practical tips and insights from others who have been through similar experiences:

1. Regular use of a hernia support belt:
- Many people find that wearing a hernia support belt, like the NuForm, for long periods (up to 18 hours a day) helps keep the hernia in check and allows them to stay active.

2. Lifting and activity precautions:
- After ostomy surgery, it's wise to limit lifting to no more than the weight of a gallon of milk. Heavy or repetitive lifting can increase the risk or size of a hernia.
- Even with these precautions, hernias can still happen. It's more about using support garments and proper techniques rather than avoiding activity altogether.

3. Dietary observations:
- Some foods, especially those that are hard to digest, might aggravate a hernia or cause discomfort. Everyone's tolerance is different; for instance, one person might handle raw broccoli well but need to limit cooked broccoli.

4. Long-term outlook and mindset:
- Many people live with parastomal hernias for years, even while working physically demanding jobs or caring for family. Acceptance often comes from understanding that the condition is manageable with the right support devices and habits.

5. Supplementary information sources:
- The forum’s section on "Stoma Problems → Hernias and Stomas" offers a wealth of previous discussions filled with practical tips and shared experiences.

6. Night-time pouch management product tip:
- The BD Purewick suction pump, typically used for female incontinence, can be adapted for urostomy night drainage. By adding extra tubing and a female quick-connect adapter to the pouch outlet, continuous suction can keep the pouch empty overnight, preventing blow-outs and the need for middle-of-the-night changes.

7. General reassurance:
- While parastomal hernias can be inconvenient and sometimes uncomfortable, they are generally manageable conditions. With the help of support belts, sensible lifting limits, and personalized diet adjustments, many people continue to lead fulfilling lives.
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