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Apr 15, 2010

Adjusting Diet After Ileostomy with Short Bowel Syndrome Concerns

This topic is about managing weight loss and potential short bowel issues after having an ileostomy, which is a surgical procedure often done for severe Crohn’s disease. The person sharing their experience is concerned about continuing to lose weight and is seeking advice on how to manage their diet to prevent further weight loss. Here are some helpful insights and advice:

1. Check if you have Short Bowel Syndrome, which typically occurs when a large portion of the small intestine and colon is removed.

2. Be patient with your body. After ileostomy surgery, your small intestine needs time to adjust and learn to absorb nutrients more efficiently. It's normal to feel weak and have high-volume output initially.

3. Stay hydrated. Since the colon, which absorbs most of the water, is no longer there, it's crucial to drink water regularly. Fatigue can often be linked to not drinking enough fluids.

4. Focus on high-protein, calorie-dense drinks. You can add protein powder to your beverages to increase your intake without having to eat large meals.

5. If weight loss continues, consider specialized nutrition options:
- Total Parenteral Nutrition (TPN), which is intravenous nutrition, can help restore weight when there's very little intestine left. Some people have successfully gained weight using TPN.
- Polycose, a carbohydrate supplement available over the counter, can help with rapid weight gain. However, it's important to consult with your doctor or a dietitian before using it.

6. Work with a registered dietitian who has experience with ostomies and Crohn’s disease. They can create a personalized nutrition plan and help monitor your progress. Hospital or cancer-center nutrition departments can be good resources.

7. Maintain a positive outlook. Many people with an ileostomy find that their strength and normalcy return over time as their body adapts and absorption improves.
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