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40,881 members
Apr 28, 2010

Stoma Prolapse Experiences and Advice Needed

Topic Explanation:
The discussion in the forum revolves around experiences and advice concerning stoma prolapse, a condition where the stoma protrudes more than usual from the skin. The original poster has a stoma due to cancer treatment and is experiencing significant prolapse, which is causing discomfort and self-consciousness. They are seeking advice and personal experiences from others who might have faced similar issues.

Advice and Insights from Replies:
1. Normalcy of Stoma Movement:
- One user noted that the stoma changing shape could be a normal part of peristalsis, the movement that pushes waste through the digestive tract. This suggests that some movement and change in appearance can be expected and might not be a cause for immediate concern.

2. Management and Treatment Options:
- Several users shared their experiences with significant stoma prolapse. One mentioned that their stoma prolapse was initially manageable but worsened over time, leading to complications such as difficulty in fitting ostomy bags, formation of ulcers, and frequent bag leaks. This user eventually opted for surgical amputation of the prolapsed part, which improved the situation.
- Another user highlighted that their doctor advised against additional surgery unless absolutely necessary, suggesting that some medical professionals recommend living with the condition as long as it does not lead to more severe complications.

3. Lifestyle Adjustments:
- It was mentioned that avoiding heavy lifting and engaging in less strenuous activities like fishing might help manage the condition without exacerbating it.

4. Monitoring for Complications:
- One user emphasized the importance of monitoring the stoma for any discoloration, such as turning purple, which could indicate restricted blood flow and potential complications requiring medical attention.

5. Emotional and Social Impact:
- Users discussed the emotional and social challenges of having a visibly protruding stoma, such as feeling self-conscious about the appearance under clothes and dealing with other people's reactions. This highlights the importance of psychological and social support for individuals dealing with stoma prolapse.
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