Topic Explanation:
The forum topic is about a 35-year-old non-verbal, autistic individual who has had an ileostomy for 8 months and is experiencing low to no output, intermittent abdominal pain, and gushing of watery output. Despite CT scans and an ileoscopy showing no blockage, the cause of these symptoms remains unknown.
Advice and Insights:
- Check if the barrier ring and wafer are not too tight, as it could block the flow.
- Request a WOCN nurse to review the stoma size and pouch application.
- Consider the possibility of scar tissue constricting and releasing some output, or certain heavy foods causing temporary blockages.
- Inquire about an MRE (Magnetic Resonance Enterography) and upper endoscopy to accurately image the whole small bowel.
- Consider the theory that the small intestine may be dangling around with nothing to hold on to and occasionally getting wrapped around the stoma due to lack of body fat.
- Be cautious with heavy meals such as beef stew, pork chop dinner, or large meals like Thanksgiving dinner, as they may cause temporary blockages.
Insights:
- CT scans can vary in quality and the experience of the radiologist plays a role in their accuracy.
- MR Enterography is recommended for imaging the small bowel due to its benefits, despite taking longer than a CT scan.
- The theory that the small intestine may be dangling around due to lack of body fat and occasionally getting wrapped around the stoma is a possible cause of the symptoms.
- A hot water bottle and gentle massage helped correct a blockage after consuming a heavy meal like spaghetti.
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