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Dec 01, 2022

Revisiting Ostomy After Takedown Surgery: Seeking Advice

This topic is about someone who has been through a series of surgeries related to their digestive system. They initially had their colon removed and an ileostomy created in 2015. In 2020, they underwent a takedown surgery to create a J-pouch, which unfortunately did not go well. Now, they are planning to return to an ileostomy and are seeking advice from others who have experienced a similar journey. Here are some insights and tips shared by others who have been through this process:

1. Many people have gone through the same sequence of surgeries: starting with a colectomy, then a J-pouch, followed by a takedown, and finally settling on a permanent ostomy. They report that the permanent ostomy significantly improved their quality of life. One person mentioned having their final surgery in 2015, which included a "Barbie butt" closure, and they healed well and felt like they got their life back.

2. The success rate for J-pouch surgeries is around 50%. Several individuals noted that they were not informed of this statistic before their takedown surgery. In hindsight, they would have chosen not to proceed with the J-pouch.

3. It is crucial to understand the realistic odds and potential complications before deciding on another takedown or pouch. Gathering comprehensive information and setting realistic expectations can help in making an informed decision.

4. Community support is incredibly valuable. Members encourage asking specific questions as you plan for a new ileostomy, as this can provide guidance and reassurance during the process.
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