This topic is about a 77-year-old individual who has been dealing with persistent rectal bleeding since undergoing ileostomy surgery. The bleeding is severe enough to cause a very low blood count, requiring iron infusions. The medical team suggests removing the rectum to stop the bleeding before anemia returns. The individual is not interested in reversing the ileostomy and is seeking advice from others who might have had similar experiences.
Here are some helpful insights and advice:
1. While mild, occasional rectal bleeding or mucus after an ileostomy can be considered "normal," significant bleeding that requires iron infusions is excessive and needs immediate attention.
2. From a personal experience spanning four years:
- Continuous bleeding after an ileostomy led to severe anemia, which was managed with Vitamin B12 and iron supplements.
- Doctors were unable to find a specific cause for the bleeding.
- The bleeding eventually stopped on its own.
- Removing the rectum, often referred to as "butt surgery," was suggested as a likely permanent solution when an ileostomy reversal is not desired.
3. A proctectomy, or removal of the rectum, usually stops any remaining bleeding because it removes the problematic rectal tissue.
4. If the bleeding continues and causes anemia, it is important to:
- Insist on a thorough evaluation, including a scope examination starting at the anus to find the bleeding source.
- Consider consulting additional or more experienced gastroenterologists or surgeons if the current medical team cannot determine the cause.
5. Until surgery can be performed, it is crucial to:
- Closely monitor blood counts.
- Continue with iron or B12 supplementation as prescribed by healthcare providers.
See full discusison