This topic is about managing a severe stricture beneath an existing colostomy. The person sharing their experience has been living with a colostomy for 18 months and is facing challenges due to a worsening stricture below the stoma. This stricture is so severe that it prevents medical procedures like contrast dye tests and colonoscopies. Additionally, they are dealing with severe motility issues caused by a condition known as Chronic Intestinal Pseudo-Obstruction or Chronic Enteric Smooth-muscle dysfunction (CES), which has led them to rely on total parenteral nutrition (TPN). Their medical team is suggesting the removal of the entire colon to help them stop TPN, start eating again, and reduce pain. They are seeking advice from others who might have faced similar issues, asking about treatments and whether an ileostomy can be flushed.

Here are some insights and advice shared by others:

1. Proper hydration might improve bowel function. One member mentioned the benefits of electro-negative (ionized) water, as discussed by Dr. Hiromi Shinya and Dr. F. Batmanghelidj. They also offered to share excerpts from Dr. Batmanghelidj’s book, "You’re Not Sick, You’re Thirsty!"

2. A total colectomy, which involves creating a permanent ileostomy, can be an effective solution for severe strictures and blockages. One person shared their positive experience with this procedure, noting good stoma behavior 5½ years later, although they manage it with a strict diet due to motility issues and multiple drug allergies.

3. Another surgical option is targeted surgery. One member had a 5 cm stricture directly below an ileostomy. Their surgeons were able to exteriorize the small bowel through the existing stoma, remove the strictured segment, and create a new stoma, all done laparoscopically without reopening the abdomen. This successfully ended their chronic blockages. They suggest discussing with surgeons whether only the strictured segment, rather than the entire colon, could be removed.

4. Ongoing peer support is available. Members are open to further questions about diet, stoma care, and adapting after surgery.