This topic is about someone who recently had an unexpected ileostomy due to surgery for endometriosis. They are navigating the challenges of recovery, considering the possibility of a reversal, and dealing with various physical and emotional issues. Here are some insights and advice shared by others who have been through similar experiences:

1. Emotional Coping and Disclosure
- The early weeks are often the toughest, but life tends to normalize over time.
- Being open with family and friends can help reduce stigma and garner support.

2. Reversal vs. Staying with a Stoma
- Some people choose not to have a reversal because they find relief from previous pain and incontinence, and they can avoid long-term medications.
- It's important to thoroughly research and talk to multiple patients before making a decision.

3. Possible Fistula / Passing Wind Vaginally
- Passing gas vaginally is not normal and could indicate a small tear or fistula. It's crucial to push for imaging and rapid assessment, and seek emergency care if pain or fever develop.

4. Mucus from the Rectum
- This is common in people with an inactive distal bowel and is usually harmless unless there are signs of infection.

5. Diet and Gas Control
- Introduce new foods slowly and avoid gas-producing items early on. Be cautious with carbonated drinks as they can cause increased output.

6. Weight, Hydration, and Work
- Rapid weight loss after surgery is common, so focus on nutrition and fluids before returning to work.
- Some people needed three months or more off work; returning too early can lead to dehydration and other issues.

7. Sleep Positioning
- Use pillows to support your back and place one between your knees to help with comfort. Some find elevating the mattress edge helpful for side-sleeping.
- Avoid prescription sleeping pills initially, as deep sleep might lead to over-filling and leaking of the pouch.

8. Relationship Stress
- Partners should be supportive through health challenges. If not, prioritize your own health and consider counseling or, if necessary, separation.

9. Dealing with Healthcare Providers
- Be proactive: come prepared with research and specific requests, and insist on second opinions if needed.
- Persistent and informed patients often achieve faster results.

10. Long-term Management Tips
- Continue B-12 supplementation if the terminal ileum was resected.
- Be aware of potential hernias around the stoma; core weakness might require later repair or relocation of the appliance site.
- Trust that sleep, routine, and confidence will improve significantly after the first year.