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Nov 19, 2010

Living with a Severe Stomach Wound and Seeking Support

This topic is about someone dealing with a very challenging medical situation involving a large open abdominal wound, a stoma, and a fistula that require constant care. After spending months in the hospital and undergoing multiple surgeries, they are left with a fragile abdominal area and are considering legal action against their surgeon. They are also seeking companionship and advice on how to manage their condition and improve their quality of life.

Here are some pieces of advice and insights that might be helpful:

1. Legal and Second-Opinion Steps
- In the U.S., you don't need to prove intent for malpractice; you must show that the doctor didn't follow accepted standards and that this caused your injury.
- Gather all medical records and seek an independent opinion from another surgeon or wound-care specialist. If they support a malpractice claim, consult a lawyer right away.
- In Canada, the requirements are stricter, but having thorough documentation, including photos, is essential.
- Keep photographs of your wound and fistula; they can be useful for legal purposes and explaining your situation to others.

2. Medical and Wound-Care Suggestions
- Consider asking about a wound-vac system, which can help large abdominal wounds heal faster.
- Wet-to-dry dressings with silver-alginate products can help fill deep wounds and control infection.
- A supportive abdominal or hernia belt can help compensate for lost muscle. You can modify it to allow the pouch to hang outside while still providing support.
- If your current doctor isn't responsive, consider switching to another surgeon, ostomy nurse, or wound-care team.

3. Coping with Irreversible or High-Risk Reversals
- Sometimes reversals don't work out, and some people have experienced bowel ruptures after what seemed like successful procedures. Accepting a permanent ostomy might help avoid repeated crises.

4. Emotional and Practical Support
- Recovery takes time, and it's normal to experience mood swings. Take things one day or even one hour at a time.
- Connect with ostomy forums, local support groups, or nurses specializing in Enterostomal Therapy for advice and companionship.
- Living alone is possible: plan visits with family or friends, use mobility aids like a scooter, and maintain online friendships.
- Share your story, but try to balance it so that friends and family don't feel overwhelmed and withdraw.

5. Encouragement
- Many people have gone through similar experiences with long hospital stays and multiple surgeries, and they report that life gradually improves.
- Remember that even the best doctors can't always predict complications. Focus on healing in the present rather than dwelling on blame.

6. Mentioned Products and Items
- Kugel mesh (a type of hernia mesh) was mentioned as the cause of injury for one person.
- Wound-vac (vacuum-assisted closure device).
- Silver alginate dressing/packing.
- Abdominal or stoma support belt (specific brand not mentioned).
See full discusison
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