Topic Explanation
The forum topic is about seeking input from individuals with an ileostomy about their experiences when their Crohn's disease flares up.
Replies: Advice and Insights
- "Hit by a truck" feeling, loud and gurgly sensations, swollen body, and intense pain are common experiences during a Crohn's flare with an ostomy.
- Some describe the pain as similar to labor, with cramps and extreme tiredness.
- Pain medication may need adjustment during a flare, and it's important to seek medical advice promptly.
- Differentiating between Crohn's symptoms and scar tissue/obstruction is important. Crohn's flare pain is intense, comes and goes, and may be accompanied by pain in the knees.
- Post-op scar tissue can cause a different type of pain, often occurring after eating and causing a constant pain in a specific area.
- Feeling extremely unwell, tired, and experiencing stomach cramps are common during a flare-up.
- Some individuals have found relief from flare-ups by taking medication such as Pentasa.
Conclusion
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