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Feb 11, 2011

Seeking Input - Experiences of Crohn's Flare with an Ostomy

Topic Explanation
The forum topic is about seeking input from individuals with an ileostomy about their experiences when their Crohn's disease flares up.

Replies: Advice and Insights
- "Hit by a truck" feeling, loud and gurgly sensations, swollen body, and intense pain are common experiences during a Crohn's flare with an ostomy.
- Some describe the pain as similar to labor, with cramps and extreme tiredness.
- Pain medication may need adjustment during a flare, and it's important to seek medical advice promptly.
- Differentiating between Crohn's symptoms and scar tissue/obstruction is important. Crohn's flare pain is intense, comes and goes, and may be accompanied by pain in the knees.
- Post-op scar tissue can cause a different type of pain, often occurring after eating and causing a constant pain in a specific area.
- Feeling extremely unwell, tired, and experiencing stomach cramps are common during a flare-up.
- Some individuals have found relief from flare-ups by taking medication such as Pentasa.

Conclusion
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