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Oct 11, 2009

Facing Husband's Illeostomy in Ten Days, Need Advice!

This topic is about preparing for life after an ileostomy, which is a surgical procedure that Chris, a 43-year-old with Stage 3b colorectal cancer and a history of ulcerative colitis, will soon undergo. The surgery will be followed by chemotherapy and radiation. Chris and his wife, Tina, are understandably anxious about how their everyday life will change, including aspects like intimacy, sleep, exercise, and overall health. They are seeking practical advice and emotional support to help them navigate this new chapter.

Here are some helpful insights and advice:

1. Keep a sense of humor and support each other emotionally. A positive mindset can significantly aid in recovery.

2. Remember that cancer outcomes can vary, but long-term survival and even a full "cure" (often measured at five years post-surgery) are possible. Try not to be discouraged by negative stories you might find online.

3. Radiation treatment can be particularly challenging, but it is often considered essential by medical professionals.

4. A strong and supportive marriage can make adjusting to life with an ileostomy much easier. The role of a spouse or partner is crucial in this journey.

5. For maintaining sexual intimacy:
- Treat your relationship as normal and reassure Chris that he is still desirable.
- Building comfort and confidence in the bedroom can help preserve sexual function.

6. Adapting to an ileostomy is largely about mindset. With time and support, most people find they can return to their routine daily activities.

7. Focus on taking one day at a time and try to avoid worrying too much about future "what-ifs."

8. Consider joining in-person or online ostomy support groups together. Shared participation can be beneficial for both the patient and their partner.
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