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41,431 members
Jan 29, 2011

New Here and Nervous About My Upcoming Urostomy

This topic is about Juliet, who is preparing for a urostomy due to Fowler’s Syndrome, a condition affecting bladder function. She is feeling nervous about the surgery and the changes it will bring to her life, especially now that she might also need a colostomy. Juliet is looking for support and friendship from others who understand what she is going through.

Here are some helpful insights and advice shared with her:

1. Juliet's hospital admission is confirmed for next week, and she is looking forward to having the current urethral tube removed.

2. Her surgeon has informed her that she will also need a colostomy, adding to her concerns.

3. Her main worries include potential pouch leakage, odor, body image, and self-confidence.

4. She has proactively requested sample bags from suppliers to try out different products.

5. Despite additional stress from home issues, Juliet is trying to stay positive and uses cycling as a way to cope.

6. It's important to remember that no question is too small or silly; the forum is a safe space to ask anything, and members are eager to help.

7. Keeping a positive attitude can be beneficial:
- Many people initially struggle with body image, but most adjust and return to their usual clothes and activities.
- The pouch can offer the freedom to leave the house and enjoy life more fully.

8. Juliet is encouraged to take advantage of the online community and support system, which can be a great resource.

9. Several members have expressed their best wishes and encouragement for her upcoming surgery and recovery.
See full discusison
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