BORN TWICE

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460
HenryM
Oct 22, 2025 9:00 am

I FIGURE I WAS BORN TWICE, once when my mother gave birth to me way back when, then again when I came out of recovery after the ileostomy surgery. I was twenty-one that time. I think that surviving after the second birth was the most difficult. The first birth presented me with a blank slate; the second birth a blank slate with obvious, confounding complications. Following the first birth, I was a new baby with parents to take care of my daily needs. With the second birth, I was a new adult forced to forget all that came before and figure out how to deal with a bizarre new reality pretty much on my own. There was, of course, the physical element, the need to regain my strength following a lengthy hospitalization and learn how to manage my ostomy. More complicated was the psychological component, for suddenly I found myself the odd man out, as it were. What should I think about this thing that had happened to me? Was it a curse or a blessing? Without it, I would not have lasted much longer and, I only learned later, had beaten the odds just by surviving the surgery. As it was, Time, the master of us all, permitted me to heal at my own pace. That was so long ago, 1964, and here I still am, typing these words, chewing gum like a teenager, and looking forward to stuffed salmon for dinner. If there’s a lesson here, it is that Time will be your ally, if you allow it to be on your side.

Justbreathe
Oct 22, 2025 9:54 am

Holy cannoli, Henry!
In 1964, I was a new bride in my very early 20s and did not even know what an ostomy was until some 25 years later…yet there you were at 21 dealing with something I still cannot get over at 82.

As we hear, and I am guilty of, many complaints about products available to us, I cannot even imagine what you and other seasoned ostomates had to deal with back then and how on earth you got answers to all of the many issues and questions you certainly had with an ostomy.

Even in today's world, there are many who have never heard of an ostomy.
It seems to me that most ostomates have either jumped the hurdle of acceptance and moved on or those that stumble as they struggle to overcome each hurdle on this trip (pun intended). Those of us stumblers are fortunate to have found this website and folks like you to help us on our way…thanks to all of you who have taken the time to be ever-so-helpful and understanding to those who stumble both physically and mentally.

As a side note, I am reminded of when I was a young mother and my 13-year-old daughter and I would disagree about something. She would continue to complain, argue, and pout until I would finally say to her….” Go pout your ass off in your bedroom” - what kind of mother would say such a thing…well, one who never heard of an ostomy for sure! jb

Posted by: catarina.fhyr

Every morning when I enjoy my big cup of coffee I scroll through this site and this warm feeling just overwhelms me.

I never post anything (too shy and it feels like I don’t have anything of interest to share tbh) but I sure read a lot of posts from you guys and they are so informative, supportive encouraging and so so full of love and a big dose of humor.

I feel like part of the best family in the world (even though I am just sitting quietly in the corner lol).

I just wanted to share that feeling and say thanks to all of you for being so wonderful.

And also, please keep some fingers crossed for me this week. I have my blood test on Thursday, checking my CA 125 levels. Ovarian cancer reoccurrence fear unlocked again. I hate it!

Lots of love from Sweden

bowsprit
Oct 22, 2025 3:58 pm

Well done, Henry. It must have been difficult at 21.

TerryLT
Oct 22, 2025 9:29 pm

And you have truly made the most of the time you've been given. Very insightful, Henry. You clearly didn't lose any brain cells during your recent hospital visit.

Terry

Jayne
Oct 22, 2025 11:20 pm

Yep ..... It was a challenge when at 25 I had mine .... back in '79 ..... but I did have the benefits of those 'classy new Nordic bags from Dansac ..... they were far cuter than those that had gone before!

Now, I am grateful for black and white silky bags which 'match my underwear!

And many other improvements over time!

I was very fortunate to have a team of vascular surgeons do mine ..... one of whom was known to my family!

Nowadays, specialism rules the day ..... and generally I guess this is great, but it's interesting how, over time, protocols and many elements of medicine and surgical diversity have changed.

Quite an extensive field to navigate at times!

~ ~ ~ ~ ~ Jayne ~ ~ ~ ~ ~

UK

 

My Ostomy Journey: Bruce | Hollister

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TerryLT
Oct 23, 2025 9:19 pm

I know I responded to this post yesterday, but what I really wanted to say is this:

You really knocked it out of the park with this one, Henry. Truly, one of your best posts. The baseball metaphor isn't an accident. I know you are a baseball fan and wrote about it recently, so I just wanted to get in a little dig, as we Canadians, even non-sports fans like me, are jumping on the Blue Jays bandwagon. It's all about us kicking some Yankee ass. I know the odds aren't in their favor, but that's OK. We are proud of our boys.

Terry

TerryLT
Oct 24, 2025 9:28 pm

Well, I must say, I expected SOME response from you, Henry.  It occurred to me that you may have mistaken my reference to Yankees, as a reference to the baseball team.  It was not, but as it happens, they already kicked those asses. 

Terry

HenryM
Oct 24, 2025 11:05 pm

I'm following you, Terry.  LOL