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41,449 members
Aug 02, 2011

Struggling with Crohn's Disease as a Teenager

This topic is about a young person navigating the challenges of college life, relationships, and making decisions about surgery while living with Crohn’s disease, ulcerative colitis, and a new colostomy at the age of 19. Here are some insights and advice that might be helpful:

- You are not alone. Many people, including others your age, have similar experiences. Use forums and private messaging to connect with others, share your story, and reduce feelings of isolation.

- Things can get better over time. Even after setbacks, achieving remission and better symptom control is possible.

- Focus on taking one day at a time. Worrying about the future can increase anxiety and worsen gut symptoms.

- Your health should be your top priority. Make sure to get enough rest, eat well, and keep up with medical appointments, as these are the foundation for managing school, work, and relationships.

- Managing stress is crucial. Consider counseling, joining support groups, journaling, meditating, or engaging in activities that help you relax.

- Be open with your friends and classmates. True friends will listen and support you, and being honest can lighten the burden of keeping secrets.

- When it comes to sex and intimacy:
1. Pain is common, so don’t feel pressured to engage until you’re ready.
2. Explore different ways to be intimate and communicate openly with your partner.
3. A gynecologist can help evaluate and treat any pain, which might ease your concerns.

- Regular stoma dilations, as some people receive, can help relieve strictures and delay the need for major surgery.

- While positive thinking isn’t a cure, it can help reduce stress and ease gastrointestinal symptoms. Negative thoughts can often make pain feel worse.

- Remember, a loving partner will appreciate you for who you are beyond any physical limitations, and the right person will be willing to adapt and support you.
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