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Jan 06, 2012

Adjusting to Life with an Ileostomy After Cancer Surgery

This topic is about adjusting to life with an ileostomy after undergoing cancer surgery. The person sharing their experience was diagnosed with rectal carcinoid cancer and had surgery to remove it. To help the colon heal, a temporary ileostomy was created, which was a new experience for them. In the first six weeks, they faced several challenges:

- Finding an ostomy pouching system that doesn’t leak.
- Managing skin issues around the stoma, such as burning and itching, and helping the skin heal.
- Dealing with stoma pain even as the skin recovers.

The person is slowly getting used to these changes but is looking forward to the reversal of the ileostomy.

Some additional information includes that the cancer was completely removed, and no chemotherapy is needed. The person feels grateful for this outcome but also experiences moments of frustration, acknowledging their human emotions.

Here are some pieces of advice and insights shared:

1. Try to see the stoma as a life-saving tool and focus on the health benefits it provides. Acceptance tends to grow over time.
2. Understand that experiencing a range of emotions is normal. Support groups and forums can be very helpful in coping with these feelings.
3. Healing around the stoma can be slow and sometimes painful. Regular check-ins with a stoma nurse and having patience are important, as time can help with healing.
4. Stay positive about the possibility of reversal. Many people have successfully adjusted to life with either temporary or permanent ileostomies and have gone on to lead normal lives.
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