Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,406 members
Jan 12, 2012

Reversal Surgery Delayed Due to Lupus Complications

This topic is about someone who was planning to have their ileostomy reversed, but the surgery had to be postponed. The reason for the delay is a flare-up of lupus myositis, which is causing muscle weakness and swelling in the legs and shoulders. The person has been living with lupus since their teenage years, and it was lupus vasculitis that led to the destruction of their colon, resulting in the need for an ileostomy. The new plan is to first stabilize the myositis and then aim to reschedule the surgery for early February. The person is reaching out to the community for support and promises to keep everyone updated on their progress.

Here are some pieces of advice and insights shared by others in the community:

1. Stay positive. Although postponements can feel disappointing, maintaining a positive outlook can aid in recovery.

2. Consider the delay as extra time for healing. One member shared that their surgery was delayed due to a small infection, and they now believe the extra time was beneficial for their recovery.

3. Understand that an ostomy can be life-saving. One person shared their experience of having an ileostomy, undergoing a reversal, and then needing to return to an ostomy due to complications. They emphasize that accepting an ostomy can be worthwhile if necessary.

4. Be prepared for the reversal surgery. While surgeons often describe reversals as easier than the initial ostomy surgery, several members have experienced setbacks. It's important to be aware that the "easier" surgery can still present challenges.

5. The community is offering prayers, positive thoughts, and reminders that many have faced similar delays and eventually achieved successful outcomes.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,406 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

I have a question
Medication Absorption Issues with Ileostomy
Binder Clips for Fixing Leaky Velcro Pouches
New to this site
Outspoken, outrageous, and newly ostomated — proud mom to a teen son & a rescue wiener who keep me laughing daily.
Flying with a Stoma: Tips and Concerns
Keep laughing
Managing In-Flight Bag Emptying for Frequent Travelers
Healthy Shakes!
Heyy I’m new here!

New Topics

Saturday Night at the Bodega
Debilitating Pain after Granulomas treated with Silver Nitrate
Mucus Bad Smell
CHECKMATE
Caring
Less of a Tip, More Like Catharsis
B. Withers - Be Kind 42
*Magic LOve Spells 📞 @ +27762248449in San IgnaciO, BELIZE.*& Marriage spells, BRING BACK LOST LOVE 1OO%, VOODOO, PSYCHIC READING,** SPELL CASTER, MARRIAGE SPELLS, BLACK MAGIC$ GURU HEALER
And then....silence
Magnesium and Its Effects on Post-Ileostomy Leg Cramps
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑