This topic is about someone who was planning to have their ileostomy reversed, but the surgery had to be postponed. The reason for the delay is a flare-up of lupus myositis, which is causing muscle weakness and swelling in the legs and shoulders. The person has been living with lupus since their teenage years, and it was lupus vasculitis that led to the destruction of their colon, resulting in the need for an ileostomy. The new plan is to first stabilize the myositis and then aim to reschedule the surgery for early February. The person is reaching out to the community for support and promises to keep everyone updated on their progress.
Here are some pieces of advice and insights shared by others in the community:
1. Stay positive. Although postponements can feel disappointing, maintaining a positive outlook can aid in recovery.
2. Consider the delay as extra time for healing. One member shared that their surgery was delayed due to a small infection, and they now believe the extra time was beneficial for their recovery.
3. Understand that an ostomy can be life-saving. One person shared their experience of having an ileostomy, undergoing a reversal, and then needing to return to an ostomy due to complications. They emphasize that accepting an ostomy can be worthwhile if necessary.
4. Be prepared for the reversal surgery. While surgeons often describe reversals as easier than the initial ostomy surgery, several members have experienced setbacks. It's important to be aware that the "easier" surgery can still present challenges.
5. The community is offering prayers, positive thoughts, and reminders that many have faced similar delays and eventually achieved successful outcomes.
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