This topic is about someone who has been dealing with a long-term unhealed stoma wound since a surgery in November 2010. The wound hasn't closed, and a plastic surgeon has suggested a complex and experimental abdominal wall reconstruction. This involves moving side-wall muscles to the midline and securing them with a biologic mesh from cadaver tissue. Only a few surgeons in North America can perform this risky procedure. The person is feeling overwhelmed after years of medical challenges and is seeking advice and encouragement from others.
Here are some insights and advice shared by others:
1. Living with an open wound:
- One person has managed a similar wound for 30 years, requiring regular hospital visits for cleaning and packing, dealing with infections, long-term antibiotics, and pain management. This has also affected their ability to sit, stand, and work, but gradual healing has occurred over time.
- Expect the wound to influence daily life and cause occasional setbacks. Patience and consistent care are crucial.
2. Considering muscle-flap or abdominal-wall reconstruction:
- A similar procedure was offered to another person for a different wound, but they declined due to uncertain success and potential complications with future surgeries. It's important to weigh the benefits against future surgical needs.
- A forum member has undergone abdominal wall reconstruction with a biologic mesh and can provide more details if contacted.
3. Seeking a second opinion and surgical expertise:
- Someone had a successful repair of a large hernia and skin breakdown at Baylor University Medical Center, involving a complete abdominal-wall rebuild and stoma relocation. They recommend:
- Getting a second opinion, even if your current surgeon is highly specialized.
- Considering a telehealth consultation with Dr. Steven Leeds or his PA for reassurance or alternative options.
- Being cautious if a surgeon is resistant to outside opinions.
4. Emotional and practical coping:
- Online communities can offer support and remind you that you're not alone.
- Allow yourself to rest and express emotions. Lean on friends, whether virtual or local, for support, distraction, or even a shared virtual drink.
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