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Jun 26, 2013

For New Ostomates

This topic is about the journey of adjusting to a first ileostomy, dealing with leaks, and finding the right appliance. It shares personal experiences and offers advice for those navigating this new reality.

The author describes waking up from surgery to find they had an ileostomy, something they hadn't expected or known about beforehand. Here are some key experiences and insights:

- The initial instructions in the hospital felt overwhelming and only became clear after returning home.
- In the first few weeks, leaks were frequent, especially for those with a softer or overweight abdomen, leading to painful skin irritation around the stoma.
- The skin around the stoma started off raw and sensitive but eventually became tougher and more resilient.
- The size of the stoma can change quickly, so it's helpful to use free samples from manufacturers until it stabilizes.
- Emotionally, the first month was tough, with feelings of depression, but acceptance followed. Interestingly, the author found themselves missing the stoma after it was reversed due to frequent bowel movements.
- They found success with a specific product, the ConvaTec SUR-FIT Natura Durahesive, which helped reduce leaks by fitting snugly around the stoma.
- The importance of peer support is highlighted, as reading about others' experiences can be comforting and help with adaptation.

Here are some practical tips and insights:

1. To prevent leaks, use Opsite Flexifix transparent adhesive tape around the edge of the flange to secure the system, which can help achieve longer wear times.
2. Protect the skin by spraying the area around the stoma with 3M Cavilon barrier spray before applying a new wafer. This helps shield the skin from irritation caused by effluent and adhesives.
3. For emotional support, remember that even longtime users face challenges. Engaging with real-life stories on forums can be encouraging and help normalize the adjustment process.
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