This topic is about adjusting to life with a new, temporary ostomy after surgery for complications from diverticulitis. A 43-year-old former triathlete shares his journey of waking up with an unexpected stoma and ostomy pouch, and the challenges he faces. Here are some insights and advice shared by others who have been through similar experiences:
- Learning to manage the pouch involves getting used to emptying and cleaning it, and accepting the changes to your body.
- Stoma noises can be embarrassing, especially in quiet places. Many find humor helps, and sharing your story with others can make it easier.
- Cloth-covered pouches are often preferred for their discretion and comfort.
- Adjusting your mindset is important. Using humor and writing about your experiences can help process the changes.
- Many people wonder if anyone prefers life with a bag and how long it takes to feel comfortable. Sharing experiences can provide reassurance.
Additional insights from others include:
- For wear-time and changing routines, many aim for 3-5 days between changes if the skin is healthy. A two-piece system allows for easy bag swaps, while a one-piece can last up to 5 days once healed.
- Cloth-covered bags are favored for discretion, and some prefer one-piece pouches for simplicity once the stoma is less tender.
- Allowing the stoma and surrounding skin to heal before frequent changes can reduce soreness.
- Stoma noises are normal. Laughing about them and sharing your story can help, as most people are understanding.
- Post-operative insomnia is common. Writing, engaging in forums, and gentle routines can help, though some may need medication.
- Being open with friends about your ostomy can remove awkwardness and often earns respect. Viewing the pouch as a prosthetic can help, and you might find unexpected support from others.
- Emotional adjustment is eased with humor, gratitude, and support from others. Many lead active lives, and relationships are rarely affected once confidence returns.
See full discusison