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Oct 28, 2013

Partners who do not understand

This topic is all about helping partners understand and support life with an ostomy. It can be a big change, not just for the person with the ostomy, but also for their loved ones. Here are some helpful tips and insights to make this transition smoother and more supportive:

1. Invite your loved ones, whether it's your partner, children, or close friends, to be part of the journey. This includes attending pre-op site marking, post-op visits, the first pouch change, and routine appointments with the stoma nurse. Seeing the process firsthand can help demystify it and make them feel like part of the "stoma team."

2. Confidence can be contagious. If you treat your pouching routine as a normal part of life, your partner and family are likely to follow your lead and see it as normal too.

3. Encourage your loved ones to get involved in practical ways. This could mean helping to order supplies, preparing suitable meals, or even taking out used pouches. Having something concrete to do can make them feel helpful and ease the recovery process for everyone involved.

4. If your current partner struggles to accept the ostomy, remember that there are others who will. Many people have found new relationships with partners who fully embrace life with a pouch.

5. If family isn't available, consider enlisting trusted friends. Many are willing to step up and can quickly learn how to help with care tasks.

6. Involving younger family members, like a 13-year-old grandchild, can be a great way to educate them and normalize the experience for everyone.

7. A supportive partner can help maintain normal intimacy. Many long-term marriages continue to be sexually active without the pouch being an issue.

These steps can help create a supportive environment where everyone feels included and informed, making life with an ostomy a little easier for all.
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