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May 17, 2014

Sat 17th May

This topic is about managing daily routines and work shifts after having an ileostomy, particularly focusing on early-morning bag changes, shower routines, and work as a bus driver. Here are some helpful insights and advice:

- Late shifts become manageable once meal timing is sorted out.
- Early shifts are more challenging due to the desire for a long, hot shower before work and the preference for a fresh pouch afterwards, akin to putting on clean underwear.
- Changing the appliance immediately after showering can be messy due to stoma activity, especially when under time pressure.
- A current workaround involves placing a sheet of kitchen roll over the wet stoma and wrapping a towelling robe tightly to stay clean and dry for a few minutes before fitting a new bag.
- A partner has sewn elastic pads that seal over the wafer during the shower, allowing the pouch to stay on, be emptied, and rinsed, while still enjoying a long wash.
- Experimenting with routines to avoid leaks, speed up the process, and ensure timely arrival at work is ongoing.

Additional considerations and questions include:

- Seeking tips to ensure everything is "just right" during changes, with thoughts of using a hair dryer and baby powder.
- Interest in local ostomy support meetings at Queen Elizabeth Hospital, Gateshead, though work shifts may conflict.
- Managing up to 5-hour driving stints by eating controlled, light, and more frequent meals to avoid issues while on the bus.
- Staying active with two Labradors, Harvey and Hattie, and looking forward to a holiday before the next work block.

Advice and insights for managing these routines:

- Protecting the pouch in the shower can be done by placing a plastic sandwich baggie over the pouch and taping it to the skin, or using a disposable shower cap over the bag.
- For post-shower drying, hook a baby terry-cloth bib between the pouch and flange to absorb moisture, and finish with a hair dryer on a low, warm setting to ensure the wafer and surrounding skin are completely dry.
- In hot weather, a light dusting of baby powder can help reduce dampness against the skin.
- To minimize output during a full appliance change, eat 3-4 regular-sized marshmallows about 15–20 minutes beforehand to slow stoma activity long enough to complete the swap.
- Set up the change area at the bathroom sink, laying a facecloth or folded toilet paper as a "drop cloth" to catch any surprises.
- For shift workers, several small meals and avoiding late-night eating help keep output predictable during long driving periods.
- Emotional and peer support can be found by attending the QE Gateshead ostomy support group, offering local camaraderie and practical guidance.
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