This topic is about someone named Kakie who is dealing with a large prolapsed stoma after undergoing emergency ostomy surgery. She is facing several challenges, including body image issues and a lack of support. Here are some insights and advice that might be helpful:
1. Emotional and Peer Support
- Engage with online communities like "Meet An Ostomate" where many people share similar experiences with prolapse, hernia, and adjustment issues. This can help reduce feelings of isolation.
- It's normal to feel angry, upset, or depressed. Acceptance can take time, so treat yourself to small pleasures like a salon visit or a shopping trip. Keep a spare change-bag with you for peace of mind.
2. Bleeding from the Stoma
- Light bleeding from the stoma is common. However, if the bleeding becomes excessive, it's important to seek medical advice.
3. Diet to Manage Output
- To thicken output and reduce frequency, focus on low-fiber, bulking foods such as white bread, gluten-free products, rice, applesauce, bananas, marshmallows (without added sugar), jelly babies, peanut butter, potatoes, and root vegetables like swede, carrots, parsnips, and turnips.
- Limit high-fiber foods, especially those that grow above ground, as well as mushrooms and peanuts, which can worsen looseness.
- Some people find that dairy products like yogurt, American or cheddar cheese, and pasta are well-tolerated.
- Marshmallows and jelly babies can quickly firm up output, but be mindful of sugar intake if you have diabetes.
4. Managing Nausea and Staying Hydrated
- Flat sodas like 7 Up may help alleviate nausea.
5. Coping with Fatigue
- It's common to experience low energy for months after major abdominal surgery. Recovery can be uneven, so rest when needed and don't feel guilty about taking things slow or not responding quickly to messages.
6. Product and Appliance Considerations
- While SenSura Mio pouches from Coloplast worked initially, the size of the prolapse and ballooning may require different systems or custom belts. Consulting with a stoma nurse or product specialist can provide guidance on suitable options.
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