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41,405 members
Feb 15, 2015

Ain't Life Grand...???

This topic is about someone who has been living with an emergency colostomy for 15 months, facing both loneliness and financial challenges. They had hoped for a reversal surgery after a year, but the lack of insurance has made it difficult to get the necessary follow-up care. Despite having a supportive husband, they feel isolated and had hoped to find companionship in online communities. Here are some pieces of advice and insights shared by others:

1. Seek emotional support: It's important to reach out and share your story. Many people are willing to listen and offer guidance, which can be a crucial part of the healing process.

2. Consider professional counseling: Seeing a medical psychologist can be beneficial for dealing with the emotional challenges that come after surgery. It's encouraged to seek mental health support.

3. Look into colostomy irrigation: If your stoma is a colostomy, learning about bowel irrigation with the help of a stoma nurse or through reliable online resources can help reduce messiness and improve your quality of life.

4. Check Medicaid eligibility: Even if you don't have income for private insurance, state Medicaid programs might cover medical care, supplies, and possibly reversal surgery. It's worth exploring options in your state.

5. Confirm medical suitability before irrigation: Some medical conditions may not be suitable for irrigation, so it's important to consult with healthcare professionals first.

6. Positive outcomes are possible: Others have shared their experiences of regaining normalcy after ostomy surgery. Some have even transitioned to a continent ileostomy, which requires minimal maintenance and allows for more clothing options without noticeable bulges.

7. Include your partner: Recognizing your spouse's support and involving them in support networks can help both of you feel less isolated.
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