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Where Everybody Understands You
41,450 members
Oct 03, 2015

NO ONE KNOWS 'TILL I DISCLOSE

This topic is about a heartfelt poem that reflects on living with a stoma, offering a positive and unapologetic perspective. The poem highlights the personal journey of embracing life with a stoma and shares insights that can resonate with others in similar situations. Here are some key points and advice from the discussion:

- The stoma and its pouching system are seen as functional tools that do not hinder the writer from enjoying life to the fullest.

- Deciding whether to disclose having a stoma is a personal choice. Most people do not need to know unless the individual chooses to share.

- Everyone has bodily functions, so there is no reason to feel embarrassed about having a stoma.

- Maintaining a determined and optimistic attitude allows the author to live daily life without letting the stoma interfere.

- The poem aims to reflect experiences shared by other ostomates, using rhyming as a way to convey these ideas.

- In response to a new ostomate feeling guilty about needing a stoma, the author explains that guilt is an emotional reaction. By thinking logically, one can understand that illness and surgery are not the patient's fault, which helps in overcoming guilt.

- Creative expressions like this poem can be uplifting and validating for ostomates, especially those who are new to the experience.

- Community feedback highlights that feelings of guilt after surgery are common but misplaced. Adopting a logical perspective and engaging in positive self-talk can help restore confidence.

- It is perfectly acceptable to keep the fact of having a stoma private. Many people choose to disclose this information only when they feel it is necessary or beneficial.
See full discusison
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