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41,460 members
Mar 13, 2017

Overcoming Chronic Illness: My Journey with Ulcerative Colitis and Crohn's Disease

This topic is about a personal journey through chronic illness, starting with ulcerative colitis and leading to a permanent ileostomy. It highlights the challenges faced over 17 years, including misdiagnosis, multiple surgeries, and the eventual acceptance of a new way of life. Here are some insights and advice shared by others who have experienced similar paths:

1. Pain Management Alternatives:
- Some individuals have found relief from chronic pain by using cannabis oil or CBD oil, which contains high cannabinoids and very low THC. This option provides pain relief without the intoxicating effects and avoids the gastric and liver issues associated with NSAIDs. Anecdotally, CBD oil is said to be legal in Texas.

2. Emotional Resilience:
- Maintaining a positive and determined attitude is crucial. Embrace every person you meet as part of your journey, as expressed in the phrase "Cead Mille Failte," meaning "a thousand welcomes."
- Sharing your story can educate others and build a supportive community, creating a ripple effect of understanding and connection.

3. Faith and Purpose:
- Many find strength in faith, believing that every person and challenge in life has a purpose. Embracing and examining your life story can bring resilience and strength.

4. Hernia and Mesh Issues in Crohn’s:
- One person shared that parastomal hernia repairs failed due to Crohn’s disease causing mesh rejection. They now live with a large hernia that remains unrepaired because there are no safe sites for fixation.

5. J-Pouch Considerations:
- The body may reject J-pouches, especially if there is a misdiagnosis or evolving Crohn’s disease. This discussion has raised awareness, encouraging others to ask informed questions if surgeons suggest this procedure.
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