Hello! I am new to this organization and have had a colostomy for 25 years (!!). I manage it well via irrigation every other morning and practically have no unexpected BMs. However, I just started Slow Movement Strength Training to avoid osteoporosis, which is like weight lifting but on machines and very very slowly. I have tried it twice and each time I am awakened by unexpected BMs and it almost ruins the next day. I am aware that my core is being impacted but is this normal or should I give up this form of exercise. Thanks so much!
MeetAnOstoMate is a remarkable community of 41,442 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Advertisement
Hollister
Living with an ostomy doesn’t mean you have to live with stoma fluid leakage or skin irritation.
Learn how convex skin barriers work and what benefits they offer.
Learn how convex skin barriers work and what benefits they offer.



