Black Polyp on Stoma: Seeking Advice and Experiences

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508
Madspaceangel
Aug 19, 2025 8:23 pm

I have an appointment tomorrow for the removal of a polyp sitting on my stoma. I've had it for about a year. But it's bleeding a lot and making changing its bag quite messy. I'm hoping they do a biopsy as I've had colon cancer previously. Has anyone else experienced this?

TerryLT
Aug 19, 2025 8:29 pm

I have not, but I wish you the best of luck. I'm sure they will do a biopsy if you previously had cancer. Fingers crossed for good news.

Terry

Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob

Madspaceangel
Aug 19, 2025 8:46 pm

Thank you, Terry.

New to the group. Looks like a friendly group reading through the forums. Hope I can give some support to other ostomates.

Keeping a positive outlook. What will be, will be.

NikkiD
Aug 19, 2025 10:53 pm

Welcome to the group. You've found a wonderful place full of friendly, caring people. I pray all goes well for you.

SusanT
Aug 20, 2025 12:24 am

Good luck with your procedure and welcome to the site.

It is normal practice to send removed tissues like a polyp to pathology for testing. However, take no chances and specifically request that they do this. You've got a history of cancer, and this needs to be checked.

 

Avoiding Ostomy Bag Leaking | Managing Ostomy Leaks with LeeAnne Hayden

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IGGIE
Aug 20, 2025 2:37 am

Welcome aboard. Please let us know the outcome.

Regards, IGIE

Axl
Aug 20, 2025 11:18 am

Welcome from Oz 🇦🇺

Morning glory
Aug 20, 2025 1:49 pm

Welcome to the site. Please let us know how your visit goes.

infinitycastle52777
Aug 20, 2025 3:27 pm

Welcome to the group. I hope your procedure goes well. They usually biopsy things they remove from the body, so I am guessing they will do that, especially given you have had cancer in the past. Good luck. I hope the outcome is a load off your mind.

Madspaceangel
Aug 22, 2025 9:39 pm

Well, it was an interesting admission. Down to the theatre, prepped, and the consultant handed instruments to his new student and said, "Enjoy, you won't see another one of these." I think he's watched too much Grey's Anatomy, but it's not very professional in front of a patient! Anyway, I asked for a biopsy, and he asked, "Do you want one?" I replied I needed it. So Polly Polip is off to the labs for a biopsy.

Next week, I'm off to Glasgow for a scope. I've got some polyps on the inside. It's a 40-week waiting list in Aberdeen.

I don't usually take anesthetic. A bit older now and a bit worried I won't cope. I really want to watch; I've not got the patience to wait for results. I saw Roger the Lodger, a grade 4 tumor, when I had a scope for suspected colitis. What does everyone else do?

Does it get harder with age? I've had 4 scopes with no sedation.

Thanks for getting this far.

Heather

SusanT
Aug 23, 2025 1:06 am

I've never been given the option to skip sedation completely for a colonoscopy. They give what is called light sedation or waking sedation, but it might as well be full sedation; I never remember anything.

It seems like they do different things in the UK. I'm on a bowel cancer support board based in the UK, and everyone there talks about being able to watch their colonoscopy in real time. I think that's super cool. I wish I had that option.

TerryLT
Aug 23, 2025 8:32 pm

I had a colonoscopy years ago that I was able to watch in real time. Kind of cool in a weird way. Since then, I've had a couple, but I was never given the option of watching again. I think it depends on how far into the colon they go. My first one didn't go very far. Like you said, my experience of waking sedation is that it might as well be called normal sedation! No memory.

Terry

SusanT
Aug 23, 2025 9:13 pm

My impression from all the postings on the British cancer site is that they are offering something akin to a chill pill, and it is standard practice there. I've seen people diagnosed with ascending colon cancer talk about seeing it when they had their colonoscopy.

Madspaceangel
Aug 26, 2025 9:04 am

I saw my tumor during my procedure so low it was almost anal cancer. Another scope tomorrow. I'm sure I was allowed custard creams on the low residue diet last time.

SusanT
Aug 26, 2025 12:34 pm

It's true that custard creams should be low residue.

For my last colonoscopy, I did 3 days of low residue but had to switch to a clear liquid diet 1 day before the procedure.

Madspaceangel
Aug 26, 2025 1:07 pm

You must have had madazalam; sure, that's not the spelling, but how it's pronounced. It makes you forget. I'm in Glasgow now for scope tomorrow. They have gas and air; might be an option.

Three days low residue; wow, well done.

I had to do low residue yesterday; no custard creams on the list they gave me 😱

Fasting now for admission at 08:15. Should be a morning list 🤞

SusanT
Aug 26, 2025 3:37 pm

Good luck!