This topic is about someone dealing with challenges related to their ileostomy appliance, ongoing issues with abscesses and fistulas, and upcoming medical procedures. They are feeling exhausted but are trying to stay hydrated and keep up with their medications. Here are some key points and advice shared in the discussion:

1. The person had a good experience with their ileostomy appliance for six days but then faced leaks after a rushed change at the surgeon's office.
2. They are undergoing imaging to investigate current problems and have had changes in their medical treatment. Entyvio was stopped, and there was a plan to restart Remicade, but this is on hold due to an abscess.
3. They have had issues with Remicade in the past, which makes its future use uncertain.
4. Surgery is scheduled for April 23, with imaging rescheduled to May 1, after the surgery.
5. A recent visit to a stoma nurse included a full appliance change, stoma re-measurement, and a recommendation for a hernia belt. The nurse is helping with insurance and supply paperwork.
6. Despite recent surgery, there is persistent drainage and pain from fistulas and abscesses. A seton was placed, which is uncomfortable, but bleeding has stopped.
7. An MRI was completed, but they had to remove a fentanyl patch for the scan and did not receive a replacement.
8. They narrowly avoided an appliance blow-out after the MRI by quickly emptying the pouch behind a dumpster.
9. Driving is limited to 20 minutes due to pain and medication, so their mother drove them to the MRI.
10. They hope the MRI results will help reduce their need for fentanyl and allow them to return to wearing regular underwear instead of hospital garments.

Advice and support from the community include:

- Offering emotional support and encouragement to take things one day at a time and focus on small successes.
- Encouraging the person to stay positive, even when it's difficult, and to keep sharing updates with the community.
- Reminding them that adjusting after an ileostomy takes time, but better days are ahead, and learning is a continuous process.