Had a great week last week with my appliance. I managed to go 6 days, mostly out of laziness, without changing. Saturday I changed. Monday, at the surgeon's office, I sprung a leak and did a quick but I thought effective change. Just now, I was reminded it was a quick change as my appliance started leaking again.
I'm headed to the shower now and hopefully I get this one right and puts me back on my Wednesday/Sunday change schedule.
I'm so exhausted, not dehydrated, and am taking my meds. The doctor has now ordered imaging and my entyvio was halted to switch to remicade. Now that's on hold because the surgeon found an abscess, so I get to go have another procedure.
I'm not confident the remicade is an answer either as my body rejected it the last time they tried to introduce it.
I haven't been posting as much because I really just don't have the energy to engage.
I'm not looking for advice or sympathy. I just needed to get it out.