Coping with Emotional and Mental Challenges

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12
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401
Romanova
Jun 24, 2025 7:13 am

It's completely normal to have concerns about: body image, lifestyle changes, dating and intimacy, managing the stoma/appliance, and fear of judgment. But many people find that after some adjustment, they regain confidence and live full, active lives.

xnine
Jun 24, 2025 8:49 am

That is me.

Axl
Jun 24, 2025 8:52 am

Me too 👍

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HenryM

If I was a relative newbie with an ostomy, I have no doubt that this site would be very helpful to me.  The members are quick to respond to questions and issues and they are filled with experience.  When I joined, I already had a lifetime with an ostomy, so I just regard it as a place to meet and communicate with other folks similarly situated.  Either way, it is a good site.

AlexT
Jun 24, 2025 10:05 am

I have some confidence.

Cammey
Jun 24, 2025 12:26 pm

I'm only home 14 days from surgery. I lost about 50 pounds while not feeling good before the surgery. It was about six months before I had the surgery. Now I'm home from the hospital, and my bag keeps falling off because of all the scars, creases, very deep and saggy skin on my stomach. Very frustrating. I cannot seem to keep a bag on longer than three or four hours. I've been having to change three or four times a day, running out of supplies. My doctor signed me up for a class on ostomy care, which I hope will help. I guess it's trial and error with ostomy pouches, but I'm very depressed over it.

 

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Axl
Jun 24, 2025 1:03 pm

Hello cammey

Do you not have an ostomy nurse available so you can get a bit of one-on-one? Otherwise, the sooner you get into that ostomy class, the better. Do you use a moldable ring? A belt to hold the appliance firmly against your abdomen? Is the area completely dry before applying the bag to your skin? These things are just the basics to get started with.

warrior
Jun 24, 2025 1:46 pm

@ Romanova..

So young. So wise. So true. In the early days of recovery, most people don't see past the bag. They let it run their lives for way too long.. Good post. Valid.

Impressed, I am, with your insightfulness. 👍

Welcome to the club. 👋

Robjac2
Jun 24, 2025 9:37 pm

4 weeks post-surgery and the emotional aspect is worse than the physical. Although the physical is still a factor. I don't want to leave my house for more than a doctor appointment. I don't like when people try to give pep talks. I know they mean well, but it doesn't help. Now I'm trying to figure out, even with deodorizer, why I smell the bag. No leak that I'm aware of; I'm not sure if it's just me or if it really smells. I can't seem to hide the bag under clothes and have seen all of your suggestions. I work in a school, so I'm off for the summer, but may have to return to work before my revision surgery. So much anxiety.

infinitycastle52777
Jun 25, 2025 1:46 pm

That's me. I am gaining confidence in dealing with things, but it does take some time. Sometimes, there are setbacks.

corlsharonl49
Jun 25, 2025 11:59 pm

If you are off for the summer, take the opportunity to find an ostomy nurse. Try different products. Many of us swear by barrier rings, but you have to find the right one for you. It does take time. I know it's easier said than done, but don't let it beat you.

warrior
Jun 26, 2025 12:38 am

How far are you from Orlando? Come meet and greet your peers at the UOAA conference.

It just might be what you need to see and hear to avoid all this despair.

merman1974
Jun 29, 2025 10:08 am

I have been through some very low points since getting my ileostomy. Getting divorced over the last year has been one of the toughest parts of my life. But I am in a better place now. I still find traveling difficult, but I finally feel like I want to get back out there and find someone new.

Cammey
Jul 01, 2025 3:01 am

I do have a visiting nurse that comes to the house. My stomach is so scared, and I lost so much weight, and part of the incision is next to the stoma and drainages. I have been using a belt. I finally went to the Tucson Medical Stoma Clinic; the nurse showed me a Coloplast and convex pouch. It actually stayed on for 3 days. Things are looking up. I'm going to try and go to my son's home over the 4th. My surgery was May 29, which makes it a month. I have not left the house, unsure about the pouch falling off. But this last week, the pouch stayed on using the Coloplast. So I will venture out. Wish me good luck.