This topic is about a person experiencing issues with their loop ileostomy, which seems to be shrinking after changing the appliance. This change is causing the skin barrier to lift and creating concerns about leakage, leading to frequent changes. The person is unsure if the stoma is actually shrinking or if the barrier is not adhering properly. They are seeking advice and insights from others who might have faced similar issues.
Here are some helpful points and advice:
1. Stoma Behavior
- It's normal for a stoma to change in size and shape throughout the day. It might flatten during a change and become fuller later. Loop ileostomies can be oval and may sag, making them more challenging to fit than end ileostomies.
2. Retraction vs. Diameter Change
- Determine if the stoma is retracting below skin level or just narrowing. The approach to managing these issues is different. Consulting an ostomy nurse can be beneficial, as many people need multiple visits to resolve fitting issues.
3. Improving Wafer Adherence
- Consider trying a convex skin barrier or wafer, which can help push the stoma outward and prevent leaks. Some options include Hollister convex models, Coloplast Sensura Mio Convex, and ConvaTec Esteem Synergy Convex.
- When applying the wafer, gently push your abdominal muscles outward to mimic a bloated position, center the wafer, and press down firmly while relaxing your abdomen to ensure a tight seal.
- Cut the opening to fit snugly around the stoma, leaving a 1–2 mm clearance. Fill any gaps with barrier rings or ostomy paste.
4. Accessing Products and Samples
- In Canada, you can request free samples from manufacturers like Hollister, Coloplast, ConvaTec, Salts, and Cymed without needing nurse or doctor approval.
- In the U.S., you can also order samples directly. Changing regular supplies only requires a one-time signature from your doctor for insurance purposes. Pharmacists may not be familiar with ostomy supply rules.
- Experiment with different products, such as wafers, convexities, barrier rings, pastes, powders, adhesive remover wipes, and support belts, to find the best combination for you.
5. General Tips
- Keep a measuring guide handy and re-measure your stoma every few weeks.
- Carry emergency supplies in case of unexpected seal failure.
- Anxiety about leaks is common, but with practice, the right products, and support from a stoma nurse, most people with loop ileostomies can extend wear time to 3–5 days.
See full discusison