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41,480 members
Jul 16, 2023

Response to PTSD Crisis as an Ostomate - My Journey and Support

This topic is about the inspiring journey of an ostomy nurse who faced numerous challenges after receiving a permanent ileostomy. Despite battling severe health issues, she found hope and strength to continue her life and career. Here are some key points and advice from her story:

1. She has faced over 10 antibiotic-resistant bloodstream infections, each causing temporary psychotic-like episodes that resolved once the infection was treated.

2. A series of infections led to 264 days in the hospital in 2019, kidney infections, the removal of her right kidney in 2021, and the start of dialysis in 2022.

3. Pain management was a significant challenge. Dilaudid was ineffective due to a metabolic issue, leaving her in severe pain. She was discharged on OxyContin, which controlled the pain but led to dependence, requiring five years of pain-management weaning.

4. She had to relearn to walk twice and traveled for outpatient wound care and physical therapy because home visits were too expensive.

5. She experienced personal losses, including losing her home and her husband, who passed away in 2022 after battling PTSD and Alzheimer’s.

6. Despite profound PTSD and depression, she found purpose in helping others online, engaging in creative activities, and starting a new relationship.

Practical tips she shares:

- Keep moving, as even small movements aid recovery and bowel function.
- Use laxatives as needed to manage opioid-induced constipation.
- Accept that many ostomates sleep lightly due to fear of pouch leaks; plan for it but don’t let it dominate your life.

Her story offers perspective and gratitude, encouraging others to stay resilient. It highlights the importance of self-acceptance and valuing time with loved ones, who should accept you as you are.
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