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Aug 02, 2023

Hernia Belts - Seeking Recommendations and Experiences

This topic is about finding the right hernia support belt after having ileostomy surgery. If you've noticed a bulge or a heavy feeling on the side of your abdomen where your stoma is, you might be dealing with a parastomal hernia. Here are some helpful tips and advice from others who have been in a similar situation:

1. Nu-Hope Belts
- This brand is highly recommended for its strong support and comfort. Many people have used it daily for years.
- The "Cool Comfort" line has been effective in preventing hernia progression for some users.
- There is a version with a "prolapse strap" that flattens the stoma, but it might cause pancaking. One user modified it with Velcro for adjustable pressure.
- You can order through your usual supplier or directly from Nu-Hope to ensure you get the right size and model. Shipping is usually prompt.

2. Importance of Correct Sizing
- It's crucial to have a WOC/stoma nurse take precise measurements. An incorrect size can cause discomfort or even dislodge the pouch.
- Some people had to change belts because the size they ordered online didn't match the nurse's measurements.

3. Wearing Schedule and Comfort Tips
- Many people wear the belt all day and take it off at night when lying flat, as the hernia often retracts in that position.
- Using a fabric sleeve or soft cover can make the belt more comfortable for all-day wear.
- If you experience discomfort or the belt pushes the stoma outward, it might be a sign that you need a better fit.

4. Alternative Options in the UK
- CuiWear support belts can be prescribed by UK stoma nurses and are good for exercise, though they might not offer as much support as Nu-Hope.
- Vanilla Blush hernia support vests are comfortable for everyday use, provide firm support, and are available on prescription in the UK.

5. General Advice
- Start using a well-fitted belt early to help limit hernia growth.
- Belts are especially helpful during activities like coughing or physical work.
- Be prepared for a period of trial and error to find the most comfortable and functional option for you, which might include making adjustments like adding Velcro or trying different models.
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