I had my surgery in April 2023 when Stanley my ileostomy was made. It has made an amazing improvement in my life.
In the last few weeks I seem to have a bigger bulge in the mummy tummy on Stanley's side compared to the other side and a frequent heavy dragging feeling..... Hence I wonder if I am developing a hernia?
Am due to see my stoma nurse next week but wondered if anyone could recommend a good hernia support belt.... Do they work? Do they help? Any advice welcomed.
I was measured by 2 WOC nurses for a "proper" fit....it turned out to be a bit different from the one I initially purchased on line. For me, neither are very comfortable after an hour or so as they seem to squeeze ole' Seymour (stoma's name) outward more than we like... . jb
I use the nu hope belt. I really like it and I use it everyday. However...
When my ostomy nurse ordered it she ordered the wrong size that did not fit properly on my appliance. As a result it kept ripping the bag off so I stopped wearing it. Big mistake I now have quite a large hernia.
So I called nu hope directly and they helped me get the right belt for me. In addition to daily use I really appreciate it when I asick and have to cough. I made a sleeve with comfortable fabric to slip around it since I wear it all day. The belt is not terrible but nice fabric on skin is nicer.
Nu-Hope does have a prolapse strap belt that will hold down the stoma. I tried mine for a full day. Squished my stoma, resulting in reduced bulge showing thru my shirt. But...mucho pancaking. Had to change my wafer bag. So I cut off the prolapse strap.
I'm going to sew velcro on the side of the ring where strap was cutoff, and the cut side of the prolapse strap. So velcro on both sides of the ring. That way instead of pulling the strap over the stoma, I can lay the strap on top. Gives me better control of the pressure exerted by the strap on my stoma.
Thanks for this info...I just saw my wound care nurse since I have a new bulge under my stoma - I think it was from a coughing spell a month ago. As much as I tried to hold my stoma in while I coughed, it was almost impossible since the cough was relentless for weeks. My wound nurse just took measurements and hopefully it will arrive soon - she said these Nu- Hope belts are the best. I assume this something I would wear all day - but can it be taken off at night? The only time I don't notice the bulge is when I'm laying down, I think the nurse called my hernia retractable. And I guess they won't fix it until my reversal, so I'll have to deal with it until then. Can't believe I am only 4 months in and already have a hernia!