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Aug 21, 2023

Needing Hope to Get Me Through Tough Times

This topic is about finding ways to cope with and conceal a high left-side colostomy after surgery due to a colon blockage related to recurrent ovarian cancer. The person is adjusting to life with a stoma, which is located above the belly button, making it challenging to hide. She is eager to return to her active lifestyle, particularly golfing, but is concerned about support, concealment, and body image. Here are some helpful insights and advice shared by others who have faced similar situations:

1. Concealment and Support Garments
- Consider using tummy sleeves from maternity stores, bandeau-style covers, or Stealth Belt wraps to secure and disguise pouches.
- Support belts like those from Nu Hope can provide abdominal support and help reduce the risk of parastomal hernias.
- Clothing options such as long shirts, jumpsuits, leggings, cycling shorts, body-con dresses (sized up), high-waist underwear, skirts, and dresses can effectively hide the appliance. Loose golf attire is also recommended for the course.

2. Activity and Sports
- Many have successfully returned to golf and other activities like sea kayaking and wheelchair sports. Starting with miniature golf or light practice swings can help build confidence.
- For water sports, consider sizing up wetsuits or kayak spray decks and be mindful of food intake beforehand.

3. Hydration and Nutrition
- Stay hydrated by drinking water with electrolytes. Slowly sipping a daily 16.9 oz Gatorade Fit or similar can prevent dehydration-related fainting.
- Be cautious with rich foods while traveling and adjust your diet gradually.

4. Skin and Stoma Care
- Schedule follow-up appointments with a certified stoma (WOC) nurse for skin issues, appliance fit, and stoma health. They are essential for maintaining stoma well-being.
- Report any bumps or new growths on the stoma promptly for evaluation.

5. Education and Support Resources
- Utilize resources like the United Ostomy Association of America (UOAA) and Ostomy101.com for guidance on foods, blockages, skin care, travel, product reviews, and local support groups.
- Engage with in-person or online support communities to reduce feelings of isolation. Remember, "wearing a pouch does not define who you are."

6. Emotional Coping
- Understand that feelings of anger, sadness, and "why me" are normal and tend to lessen over time as routine returns.
- Keep mentally occupied with activities like walking, hobbies, meditation, and gentle exercise to help manage worry.
- Naming the stoma and maintaining a sense of humor can ease self-consciousness. Most people won't notice the pouch, and honest, brief explanations can defuse awkward questions.

7. Cancer Management Tips
- Ensure accurate cancer staging and seek second opinions if necessary.
- Research treatment options and be an informed participant in your care. Decline overly aggressive or unsuitable therapies when appropriate.
- Focus on quality-of-life choices, such as travel, family time, and meaningful activities, to maintain hope and resilience.
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