Are there any people out there with a K pouch? I love this site and all the stories, especially Henry's musings. But I feel alone on this site.
Bumba
Sep 13, 2025 5:34 pm
eefyjig
Sep 13, 2025 5:57 pm
Hi Bumba, I used to belong to an online group "j-pouch.org," and there were some folks on there who had a K-pouch. I do seem to recall seeing at least one person on here with one, too. Hold tight, and maybe you'll hear from them.
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Bumba
Sep 21, 2025 9:14 pm
Well, that is almost the same. I had my K pouch before BCRI was invented, I think. I don't have any questions or issues. Doing great with the K pouch for more than 30 years. Just was curious how many are on site. Thanks for replying.
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Mad Carpenter
Sep 22, 2025 10:20 pm
Hi,
Yes, I have had a K pouch since 2000. Although I was told that complications did happen about 30% of the time, I had been worry-free until 2 months ago. Now they have found some issues with the valve as it seems to be restricted, causing problems. I was told last week that they no longer revise K pouches as the rate of revision complications is too high. I am now contemplating going back to a standard ileostomy. Do you have questions or just want to see if anyone else has your issues? I've been very happy with mine.