Anyone Else with a K Pouch?

Replies
6
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270
Bumba
Sep 13, 2025 5:34 pm

Are there any people out there with a K pouch? I love this site and all the stories, especially Henry's musings. But I feel alone on this site.

eefyjig
Sep 13, 2025 5:57 pm

Hi Bumba, I used to belong to an online group "j-pouch.org," and there were some folks on there who had a K-pouch. I do seem to recall seeing at least one person on here with one, too. Hold tight, and maybe you'll hear from them.

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

AO166
Sep 13, 2025 6:17 pm

I have BCIR

Bumba
Sep 21, 2025 9:11 pm

Thanks. I'll keep looking here.

Bumba
Sep 21, 2025 9:14 pm

Well, that is almost the same. I had my K pouch before BCRI was invented, I think. I don't have any questions or issues. Doing great with the K pouch for more than 30 years. Just was curious how many are on site. Thanks for replying.

 

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Mad Carpenter
Sep 22, 2025 10:20 pm

Hi,

Yes, I have had a K pouch since 2000. Although I was told that complications did happen about 30% of the time, I had been worry-free until 2 months ago. Now they have found some issues with the valve as it seems to be restricted, causing problems. I was told last week that they no longer revise K pouches as the rate of revision complications is too high. I am now contemplating going back to a standard ileostomy. Do you have questions or just want to see if anyone else has your issues? I've been very happy with mine.

Bees
Oct 04, 2025 2:19 am

K pouch? I can't even spell it.