Living with a stoma can bring about various experiences, and it's natural to have questions about what's normal. One common concern is feeling pain or discomfort just before output, whether it's stool or gas. Here's some advice and insights from others who have been through similar situations:
- It's not unusual to feel mild, brief pain or pressure right before output, especially when gas is involved. Many people with both ileostomies and colostomies experience this and consider it normal unless the pain is severe, prolonged, or getting worse.
- The consistency of your output can make a difference. Thicker stool can create more pressure and discomfort. Adjusting your diet or fluid intake might help manage this.
- If the pain is persistent, increasing, or not clearly linked to gas or thick output, it's a good idea to consult a surgeon, stoma nurse, or gastroenterologist.
- When it comes to choosing between convex and flat wafers, many people with retracted, flush, or uneven stomas prefer convex barriers because they improve the seal and wear time. Those with well-protruding stomas might find flat wafers more comfortable. It's a personal choice, so try both and see which one prevents leaks and irritation for you.
- A convex wafer can sometimes feel bulky or dig in, especially if your stoma is high on the abdomen or when sitting. Once post-operative swelling goes down, some people switch back to flat wafers.
- For the size of the skin opening, cutting it too tight can cause issues like a "turtleneck" effect, stinging, or a red ring. Leaving about a 2 mm gap or using a moldable or barrier ring can help prevent pressure and protect your skin. If the visible skin becomes irritated by stool, a closer fit or a moldable barrier plus ring can offer protection.
- If a chronically retracted stoma is causing repeated leaks or skin issues, stoma revision surgery is an option. Several people have reported good results after undergoing surgical revision.
- Some sensations you might feel include tingling, an electric-shock "sting," or just an awareness of activity. These are usually not a cause for concern unless they are frequent and painful.
- Physical activities like golf, walking, and other exercises are possible. Just keep an eye on the wafer edges for any tugging, and consider changing your appliance after heavy activity if needed.
- Remember, it's always okay to ask questions. The community has faced most problems already, and sharing experiences can be incredibly helpful.
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