Coping with the first few weeks after receiving a colostomy can be a challenging time. It's completely normal to feel overwhelmed, frustrated, and upset as you adjust to this new way of life. Here are some pieces of advice and insights that might help you navigate this period:
1. Healing and Adjustment
- It typically takes about 6-8 weeks, or sometimes longer, for your body to adjust. During this time, you might experience swelling, irregular output, and fatigue, which are all normal.
- Patience is key. Many people find that they go from barely being able to walk to jogging three miles within a couple of months.
- Celebrate small achievements, like walking to the mailbox, to keep a positive outlook.
2. Education Resources
- The United Ostomy Association of America (UOAA) and Ostomy101.com provide valuable information on topics like diet, blockages, skin care, travel, clothing, and product options.
- YouTube channels can be helpful for demonstrations on changing pouches, diet, exercise, and living actively with an ostomy.
- Local in-person support groups and online forums offer ongoing peer support.
3. Appliance Choices and Routines
- Many people use a 2-piece Hollister system, with a typical routine of changing the wafer every 7 days and the pouch 1-2 times per week.
- To protect the skin around your stoma, try to minimize unnecessary wafer changes.
- When removing wafers, use a medical adhesive remover spray on the tape edge, peel slowly while pushing the skin down with your fingers, and finish with remover wipes.
4. Preventing Skin and Hernia Problems
- Avoid heavy lifting until you are fully healed, and always support your abdomen when coughing or sneezing.
- Consider using a support belt to reduce the risk of hernias. Nu-Hope support belts are often recommended.
- Suppliers often provide samples of barrier rings, convex wafers, belts, and other products to help with leaks or fitting issues, so don't hesitate to call and ask for samples.
5. Mindset and Community
- It's common to feel shocked or emotional, so be kind to yourself.
- Remember, wearing a pouch does not define you. Life can return to a full, active "new normal."
- Keep asking questions. Everyone in the community has been where you are now and is willing to help, whether publicly or through private messages.
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